About a month ago I had a bunch of tests done to determine if I had some blood or DNA abnormality that caused my body to form a deep vein thrombosis (i.e., big blood clot) in my left calf. This DVT at some point became disrupted and send blot clots to my heart which sent them into my lungs where they stuck. Had they continued on into my brain, I might not be pushing up daisies.
I went to the hematologist today for the results.
“You are normal.”
In truth, the tests revealed a couple of genetic mutations, but nothing that could have caused the pulmonary embolisms last December.
So after hundreds of $$$ we have a definitive answer to the question: “What caused these PEs?)” Answer: “Dunno.”
My hematologist says that unless he finds a specific cause for my illness he is inclined to discontinue the blood thinners and put me on an daily aspirin instead.
I go to see my pulmonologist in mid-April. She’s probably going to vote to keep me on the thinners.
In early May I have an ultrasound scheduled to see if I my DVT is gone (the body absorbs DVTs). Then another hematologist visit to discuss the findings. With any kind of luck, this entire medical mess will be in my rear view mirror by the time I pedal out of DC for the west coast in late May.
One other interesting thing happened since my last update. Yesterday, I was riding my bike with my head down and a tree branch whacked my helmet. A blow to the head while on blood thinners can cause run away bleeding in my skull. This would cause my brain to get compressed and displaced. The chances of dying from this are high.
I described the incident to my hematologist. He told me that since the branch deflected off my helmet and didn’t cause so much as a bruise, I should be fine.
And so it goes.
We’re having fun now.