Now We’re Getting Nowhere

The DVT/pulmonary embolism recovery marches on. No setbacks so far, knock wood.

Today I ran some errands in the car. I was not the least bit tired nor did I experience any shortness of breath. The spirometer indicates that my lung capacity is still lower than normal but there is no huffing and puffing and my heart rate isn’t jumping into the red zone with minor exertion.

Only a few days ago, I was having difficulty getting the spirometer up to 2,000 ml. Last night and today I hit or exceeded 2,500. I still can’t hold it in my lungs for than a second though.

After lolling around most of the day, I went into the basement for a riding and reading session. Today I lasted 1:03 and I pedaled much harder than yesterday. So I am calling the “mileage” at 12 miles.

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I was not the least bit uncomfortable during the ride. I didn’t feel that sharp pain in my left calf as I did yesterday. And there were no stabbing pains in my right lung.

I may be going nowhere but I’m getting somewhere.

I made appointments to see a hematologist and a pulmonologist in the coming weeks. The pulmonologist saw me in the hospital. She’s calming and is a good communicator. I will not be using hematologist from the hospital. He made it clear that he’s inclined to keep me on blood thinners for life. I want a second opinion. My doctor thinks very highly of a hematologist in his building so I am going with his recommendation.

 

 

 

Basement Riding to the Mendoza Line

At the doctor’s office yesterday, I weighed 203 pounds, six pounds more than on the very same scale a month ago. Perhaps it is a coincidence but in the last six days I have downed six apple fritters, prescribed by the mental health professionals Rachel C. and Katie B. Suffice it to say, my pants are fitting a tad snuggly. My mood is good though.

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As has been the case since I came home from the hospital, I felt a little better today physically. It snowed overnight. As much as I wanted to go out and shovel the inch of powder, Mrs. Rootchopper would have nothing of it and handled the chore with ease.

For most of the day I hung out reading and waiting for the mechanic to call about Mrs. Rootchopper’s car. The year and a half old battery died. Completely. It won’t even hold a charge. So the mechanics put in a new one. Then they checked the oil and found the dipstick dry. Oops. I hope this is not the beginning of old car syndrome, the affliction that kills both your car and your bank account.

While waiting for the mechanic to finish, I went into the basement and rode Big Nellie. It was my first ride or exercise of any sort since the embolism. I took it easy and noted a number of interesting things:

  • My megamileage base will serve me well. My legs were not the least bit stressed.
  • I felt a distinct cramping in my left calf. I never cramp so I am assuming that what I was feeling was the deep vein thrombosis, the source of the blood clots in my lungs. So there you are you little bugger.
  • About 25 minutes into the ride, I felt the familiar stabbing pain in my right lung. I backed off my pedaling, dropped to a lower gear, and the pain went away. (It’s a 3 out of 10 on the objective pain scale.)
  • I felt numbness in my calves. Since I have nerve issues in my legs whenever I ride my recumbent I thought nothing of it. The numbness went away once I stood up and walked around for a minute.

As I rode I read my book. Oddly, I read much faster when I am spinning my legs than when I am just sitting in a chair. I put the reading to a secondary use. I spent one page on each cog, going up and down the cassette in the middle ring. Then I shifted to the big ring and did the same. At no time was I out of breath but my heart rate was higher than normal for the effort I was putting out.

Big Nellie in the Basement
Big Nellie, Locked and Loaded

All told, I rode 52 minutes. I’d say the equivalent of about 8 1/2 miles at the pace I was going (about 10 miles per hour).

It’s not much, but it’s a start. Now that all the fritters are gone (oink) I can hope to gradually increase my time and intensity on the bike and drift ever so gently back below the Mendoza line.

 

 

 

Two Weeks. One Lung. One Expensive Cat.

Happy anniversary to my blood clots

Well, tonight is the two week anniversary of my pulmonary embolism(s). I think we should throw them a party then show them the door. They’ve stayed too long.

My energy levels continue to incrementally improve. I can actually feel the blockage in my right lung. Deep breaths are rewarded with a stabbing pain.

Today was a normal retiree day filled with car-based errands. I went to the drug store to drop off a prescription (for blood thinner). Then I went to a DMV to get a sticker for my son’s car. The DMV was closed yesterday so the wait was well over an hour. I bailed and went to my doctor’s office. The poor man! I hit him with so many questions. He answered them all with ease.

I am not in danger of throwing another blood clot as long as I am on my medication. If I hit my head, I am to stop taking my medication and go to the nearest ER for a CT scan of my brain. A head injury could turn into an epidural hematoma, runaway bleeding inside my skull. It is the injury that killed Natasha Richardson after she hit her head while skiing.

We’re having fun now!

Any other significant hits to my body below my head require a trip to the doctor just in case.

The doctor said that the team at the hospital speculated that my pulmonary embolism may have occurred on my bike trip. Now that I think about it, the only time I have had a significant fall was when I tumbled off the porch at a motel near the end of the ride. Did I whack my left calf during the fall? This would be good news because it would indicate that my embolism was a freak accident not something systematically wrong with my body.

At the doctor, a nurse took my pulse. It was 68. I told her it was very high and she said it’s perfectly normal. Normal for me is in the 40s. So just the act of walking from my car to the elevator and from the elevator to the doctor’s office caused my pulse to increase. This will give you some idea of how my body is coping. The doctor said it’s okay to exercise but that I should take it easy and listen to my body. At the moment my body is saying “watch a movie.”

Speaking of my body, I’ve gained 6 pounds in a month. Fritters and cookies and candies, oh my. Mario Mendoza phone home.

The spirometer and I are still not getting along. I am thinking about switching to a bong. (If only!)

My doctor had some samples of my blood thinning medication so I am good to go after losing a week’s supply somehow last week. They go great with corn flakes.

I am to follow up with a hematologist and a pulmonary specialist. No hurry though. This whole recover will take a few months.

I am scheduled for an ultrasound of my abdomen to check out the nodules on my kidney and adrenal gland that the CT scan discovered. On a scale of one to ten, my doctor’s concern level is barely a two.

After the doctor, I went back to the DMV without any luck. The wait was two hours! I gave up and drove home. After all this running around, I felt fine with no exhaustion like last week.

And now for something completely different

My favorite blogger these days is Blissful Britt. Britt hikes and travels and takes terrific photos and lip syncs (hilariously) on Instagram. While hiking in Arizona her cat fell ill. She okayed the cat’s medical care, because you wouldn’t want to come home to a dead cat now, would you?

The bill came to $5,000! Alas, Brittany doesn’t have that kind of, forgive the expression, scratch. So she launched a gofundme page. If you are in a giving mood or like cats or like crazy bloggers with cats, she could use a little help.

 

 

A Sort of Boring Day

Enough with this sitting at home nonsense. Today, I had Mrs. Rootchopper’s car towed to a mechanic to have its electrical system fixed. I followed in my son’s car.

After that I went to the drug store for a couple of prescriptions. I lost 1/2 of my blood thinning pills somehow. I think they probably got swept up in post-Christmas kitchen table cleaning and are now somewhere in the landfill in Lorton. It’s kind of important that I get some more. The pharmacy has called and faxed the prescribing doctor to no avail. The doctor specifically warned me not to miss a dose and said I should let him know if I misplace any of the pills. I have three left, enough to get through Thursday morning.

Tomorrow I get three bites at this apple. I will call the prescribing doctor myself and explain the situation. Later in the morning, I am going to see my personal doctor. Maybe he can fix this. My final option is to simply fill the follow-up prescription, which is a different dosage. I think I can tweak the timing so I get through the next week without a calamity. Good thing it’s only a life threatening situation. American medicine really is effed up.

After the pharmacy, I refueled my car. What the heck? Oh yeah. I don’t do this very often. I didn’t even remember which side of the car the gas tank was on.

Next up was the hospital. As I was being discharged, a doctor told me I’d need an MRI and that this would be arranged for me. That was 10 days ago. I haven’t heard from the MRI facility. I have no idea which doctor is submitting the order. In fact, the hospital didn’t give me a list of which doctors saw me. After walking all over the damned place huffing and puffing all the while, I found medical records. They gave me a list of specialists. I am sure the list in incomplete but it’s a start.

After all this was over, I put the expiration sticker on my son’s car license plate. Only one stuck. So tomorrow I get to go to the DMV to get a replacement. We’re having fun now.

Back inside the house I started to read my book (Beartown by Fredrik Backman)  Mrs. Rootchopper came home and fell asleep in a comfy chair. Now I know I am getting better. Despite the fact that I had a pretty normal day of running around from one place to the next, I managed not to need a nap.

I am also pretty consistently hitting above 2,000 ml on the spirometer.

I think this is a pretty boring blog post. After all the drama, boring is good.

 

 

 

 

2017 – Big Numbers. Flat Finish

Dang, I banged out a pretty good year on the bike: 9,911.5 miles, nearly 20 percent more than my previous best year (2016). Take that old age!chart

September was a whopper because of the bike tour to Florida. My highest mileage month ever. October was pretty darn good too. December was a belly flop. I had to stop riding with two weeks to go because of a pulmonary embolism or embolisms. (I’m still trying to get the lingo down.)

I got hit by an SUV at the end of March. I bounced off like some sort of Zen Tigger.

I rode my bikes to work 133 times for a total of 3,912 miles until I gave bike commuting  up in August. (I retired.)

I rode only 103.5 miles indoors. (Yeah, I count those miles too.)

My Cross Check led the stable with 3,449.5 miles. The Mule, my 26-year old touring bike, came in second with 3,400.5 miles.

My Tour Easy recumbent gets used less and less each year. It’s not supposed to work that way, but if I don’t ride it all the time it’s just hard to get into the mental and physical mindset.

My most notable event rides were the Reston Century, in which I earned lanterne rouge status. What a pathetic ride. And I rode my ninth 50 States Ride with Stephen, Kevin W., Rachel C., Michael B., and Emilia. Thanks for waiting for me guys. Rachel has already laid down the challenge for me to ride my tenth in 2018.

Recent events have caused me to hit the pause button on planning for 2018. All I can do for now is focus on my recovery. The bicycling will take care of itself.

It is what it is.

Happy New Year.

Words from Christmas Past

Before the medical mayhem descended on me, I had planned on writing a post about Christmas. Here it is. A bit delayed.

One of my brothers is in the process of moving to a new, smaller home. In the process, he’s trying to get his pile o’stuff down to size. He came across something really interesting. When his eldest son was little, he had a holiday school project. It involved getting his grandparents to write a description of what Christmas was like when they were little. My brother found my parents’ Christmas recollection, written in cursive, of course. He sent me a copy.

My mother grew up in Freehold, New Jersey in the 1920s. She recalled that Christmas began:

“…at Thanksgiving time when my mother made fruit cake. Then, every once in a while, she poured a little brandy over it. That was served to our visitors at Christmas. My Dad went to the apple farms and got a bushel of Delicious, Golden Delicious, and McIntosh each. These he sent to my uncle and two cousins a basket full to each after he had mixed them…

“On Christmas eve, we went to bed early (at least I did). I guess that is when the rest of the family got ready for Christmas morning. I was the youngest of the family and even when I no longer believed in Santa I didn’t admit it. I wasn’t about to lose out on a good thing. It was at Thanksgiving that I started to look for hidden presents.

“Christmas morning we got up early, took a quick look at the tree, and unopened presents and went to seven o’clock mass. When we came home we ate breakfast and then opened our gifts. I guess we ate fast and I didn’t do much praying.

“When I was very young we had a tree [that] had metal holders for candles that were never lit. My parents were afraid of a fire because the tree never came down until the feast of the Epiphany… “

So it seems my mother was quite the scamp. And who knew that fruit cake was actually something people enjoyed. (I suppose the brandy helped.) And giving apples was very low tech.

My father was four years older. He was from Mechanicville, New York.  He recalled:

“On the day before Christmas we purchased a tree at the local grocery. We waited on Christmas eve until the smaller children were in bed. We then put the tree in the parlor and decorated it.

“Christmas morning we rose early and attended church. After church, we opened our presents and had our Christmas breakfast.

“There was a great assortment of presents. The older children received skis, sleds, skates, and other toys that older children enjoy. The younger children received dolls, books and clothing. As a rule the youngest would rather play with the empty boxes and wrappings than play with toys.

“Christmas afternoon we had dinner of turkey, cranberries, ice cream and pies. It was a very busy day for everyone.

“I hope you have a Happy Christmas in a tradition like ours.”

The summary of gifts makes me suspect that my father’s recollection compressed many Christmases into one. His was not a well to do family.

(The list of goodies made me recall the Flexible Flyer sled we had and our toboggan. The latter was the vehicle that nearly did my four brothers and me in on the scary descent from the first tee at Albany municipal golf course one winter. If you are ever in Albany when there is snow on the ground, go to Muni as it is called. The best sledding I’ve ever seen.)

Reading these letters, I could hear my parents’ voices in my head. That is a pretty cool Christmas gift indeed.

Old Man Drunk on Apple Fritters

Rachel and Katie – Part Deux

As it turns out Katie and Rachel are the Lennon and McCartney of get-well gifters. It was Katie’s idea to get me the t-shirt that gave me a dose of chronological reality with a side of laughter. Rachel’s part of the gift came in the mail today.

A couple of years ago Rachel did an internship at the Hammer Museum in Haines, Alaska. Food in Haines is expensive unless you want to eat salmon three times a day. In sympathy and in recognition of our mutual love for really unhealthy junk pastry, I mailed her a couple of apple fritters by surprise. She returned fire with a handmade postcard that really knocked me out (despite my rather grumpy appearance in the photos in the link).

I opened the box and pulled out a bag of a half dozen apple fritters. I can assure you that I am allowed to eat these because my blood thinner has virtually no dietary restrictions. It will take some time (mostly to avoid massive weight gain and pancreatic malfunction), but I will set my Old Man determination to the task.

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Six Fritters – Each One the Size of a Saucer

Rachel and Katie kind of gave away the surprise by telling me to look out for a second package. I was half expecting salmon, to be honest. I am pretty sure my letter carrier was happy it wasn’t. (As am I.)

Thanks again you two.

But That’s Not All

When I went to pick up the fritter parcel at our front door, I found, not one, but two boxes. The second package was a complete surprise. It came from my sister-in-law Leah. My in-laws hail from southern West Virginia. I have heard so much oral history in the last three decades from them but it has lacked historical context. Leah’s gift fills the void; it is a book on Appalachian history called Ramp Hollow. (If you are from West Virginia, you know that the title is pretty much perfect.)

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Many thanks Leah. It sits on top of the formidable Rootchopper Tower of PE Recovery Reading on my nightstand. I can’t wait to read it.

A Note on My Health

It had snowed in the night. The light coating made for a pretty early morning. I am grateful that we didn’t get a significant accumulation.

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My Front Yard Early This Morning

I am in no condition to shovel or wovel, even. Mrs. Rootchopper reminded me that the doctors said no bicycling for three weeks. It is unclear whether that applies to geriatric basement riding on Big Nellie. So I will be a good boy and talk it over with my doctor next week. There is also the issue of doing exercises for my back. Most of these are yoga asanas. I seriously do not want to shuffle off this mortal coil while doing a shoulder stand. (I’d give money to see the face of a yoga-mad friend when she heard that I died of acute salamba sarvangasana.)

I have strength but no stamina. Each morning I get up feeling better than the day before but even minor exertion causes huffing and puffing.

I keep hitting the spirometer to increase my lung capacity. You suck on the tube and the blue thingie goes up the metered column. They should put a bell at the top. Not that I have gotten anywhere near the top, much less my supposed goal of 3,250 milliliters of air. Still, it probably warms the heat of many to say that I suck a little bit more every day. (Maybe I could write a book called Ten Percent Suckier.)

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My mental state remains upbeat, although as I get incrementally stronger I can sense some restlessness creeping in. It is already sufficiently annoying that Mrs. Rootchopper has asked me to back off on the caffeine.

I’d rather die.

Just kidding.

 

Old Man on a Bicycle

One of the things that riding a bicycle gives me is the happy delusion that I’m not nearly as old as the calendar says. The delusion is reinforced by the fact that the overwhelming majority of my friends from the DC cycling community and blogosphere are much younger than I am. There’s nothing like a pulmonary embolism to bring you back to reality. Last week I was 62 going on 42; this week I’m 62 going on 82.

This is really a slap in the ego. I could be getting down about it but not a day has passed that someone has not sent me well wishes. I’ve had reassuring phone calls, get well cards, emails, Facebook messages, Tweets, Instagram comments, texts, and comments on this blog. I can’t thank you all enough. Three years ago at this time I was mired in depression. Now, when I am faced with something that I can truly get depressed about, depression is nowhere to be found. (I keep on the look out for the bastard, though. Also, I have Klarence on the speed dial just in case.)

As most readers know, I came to know most of my BikeDC friends because Mary Gersema took a picture of me and Little Nellie at the start of the 2010 50 States Ride. A few months later, Mary invited me to come to a bike commuter get together called Friday Coffee Club. Not long after, I met Rachel Cannon and Katie Bolton over a cup of Joe and an apple fritter.  Although my memory is a bit vague about Katie. I may have met her when she volunteered at a rest stop on a local event ride. These two volunteer a lot.

In any case, you will never meet two harder-working, bright, multitalented, funny people in your life. Over the years I’ve watched and listened as they navigated the terrible 20s, the part in our lives when we think we’ll never get a decent career going or establish a firm adult identity. It’s as disorienting as being stuck in the middle of a half million people as I was at the Women’s March last year. How do I get my bearings? How can I move forward, or sideways or make any progress at all? Why am I freaking out? (The answer that I heard at the march from a short, elderly Buddhist woman is simple: Breathe.)

A few weeks ago, before my shit hit the fan, I saw Rachel and Katie at the WABA holiday party. Indefatigable Rachel was volunteering. Katie was beaming, soon to be married and a homeowner.

I got a text the other day from Rachel. She said to keep an eye out for a package. Today it came. I half expected it to contain some fritters. That would have been funny. But the actual content was both funny and buoyed my spirits. The perfect gift. I will wear it with pride and gratitude.

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The old man will be back. Take it to the bank.

Thanks Katie and Rachel for making my day.

One Week After

Well, it’s been a week since I experienced the wonderful effects of blood clots swimming upstream from my left calf to spawn in my lungs. It’s a beautiful thing, really. Not.

I’m coming around to accepting this recovery thing. I am a little stronger each day. My health was great then,out of the blue one week ago, it wasn’t.

Yesterday three good-ish things happened. I slept through the night. Basically, I sleep by sitting up against some pillows in bed. Lying on my side was causing some discomfort (not to mention more than a little suffocation anxiety).

Good thing number two, I think, was the fact that I coughed up blood. Eww. Sorry, but I am really surprised that this didn’t happen sooner. It was only a small amount, perhaps a quarter of a teaspoon. The sooner I can get this crap out of my lungs the better as far as I am concerned. (If it becomes a regular thing, or if the amount of blood becomes significantly greater, I have to call the doctors in, just to be safe.)

Good thing number three is my family and I went to another basketball game. I walked up two flights of stairs and was pretty winded. My heart rate went way up. The tachometer was briefly in the red zone. Danger Will Robinson. But after slowly walking a couple of blocks I felt fine. Thank you, bike riding. Inside the Phonebooth (what we call the downtown arena here in DC) I decided to look for my friend Jacques. I walked down the entire 100 level to courtside. There was no sign of Jacques so I walked right back up to the concourse. My heart went thumpity thump thump. Then I walked around the arena to our seats and my heart rate came back down to normal. I made it to my seat without being exhausted like Saturday night. No tears of frustration.

The game itself was a classic. Butler, my daughter’s alma mater, fell behind by 20 points to Georgetown. Then they came back. Bit by bit. The game went into two overtimes and Butler won. My son, who knows sports way better than I do, said that Georgetown has better players but the Butler coach outcoached Patrick Ewing, the Georgetown coach who is in the Basketball Hall of Fame for his stellar playing career. Both coaches are first year head coaches.

We walked back to the car with no ill effects for me. At 11 p.m. I was a little weak, but my spirits were high. It’s amazing what counts as a good day now.

My son leaves today.  He lives on the other side of the world. I am really going to miss him.

My daughter leaves on Friday. I get one more evening with my baby. Then she’s off to London town.

It is cold outside. From the basement I can hear something.

Big Nellie is calling my name.

 

Donate to the WABA PE Wing

Every year the Washington Area Bicyclist Association hosts event rides that are based on a gimmick. The March Vasa Ride, held in cooperation with the Swedish embassy,  commemorates Sweden’s Vasaloppet cross country ski event. The Cider Ride in November involves riding over 50 miles at the end of apple picking season. And, of course, the 50 States Ride presents participants with an 11-page cue sheet to more or less guide them all over the city to ride the avenues named for the 50 states.

So it occurred to me that WABA’s year end fund raising could use a little push from a gimmick. Here’s my idea.

I have ridden 9,911.5 miles this year. I thought the remaining 88.5 miles was a fait accompli, a tap in, a slam dunk. Unfortunately I was betrayed by pulmonary embolisms, pneumonia, and a partially collapsed lung. (It’s the trifecta I’ve always wanted, Santa!)

So I thought maybe I’d ask my friends to all go out and ride 88.5 miles on December 31. This would be fun (albeit flippin’ cold) for them but wouldn’t accomplish much.

Instead, I decided to invite my #bikedc friends (and any others who are feeling generous) to donate $88.50 to WABA. You money will be used to fund the new pulmonary embolism wing of the state-of-the art WABA Wellness Center.

Just kidding.

Your money will help fund the many programs, events, and advocacy efforts that WABA conducts on your behalf.

And it will put a smile on my face.

So clink on this link to donate.

And if you can’t spare $88.50, you could always spring for some fashion fabulous WABA socks.

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All the cool kids are wearing them. All you have to do is go to the WABA store.

Cheers.